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Ehlers–Danlos syndrome
Results: 77

#	Item
51	Read For Research Kit Thank you for your interest in being part of EDS Network C.A.R.E.S., Inc.’s first national fundraiser, Read for Research. Read for Research is a read-a-thon that offers a unique way to allow anyon Add to Reading List Source URL: www.ehlersdanlosnetwork.org Language: English - Date: 2009-05-01 14:25:38 Ehlers–Danlos syndrome Syndromes Health Collagen disease Contortion
52	Inspire Case Study: Growing a rare disease community in size and activity The Challenge To achieve its mission the Ehlers-Danlos National Foundation (EDNF) needed to improve its peer-to-peer online discussion board, whic Add to Reading List Source URL: corp.inspire.com Language: English - Date: 2014-08-22 15:33:39 Ehlers–Danlos syndrome Syndromes Inspire Infrastructure for Spatial Information in the European Community Ehlers Health Collagen disease Contortion
53	Microsoft Word - FF Herit Dis Connect Tiss NL 5-13 FINAL Add to Reading List Source URL: niams.nih.gov Language: English - Date: 2013-05-29 13:02:55 Syndromes Medical genetics Collagen disease Connective tissue Congenital disorders Marfan syndrome Ehlers–Danlos syndrome Genetic testing Tissue Anatomy Health Biology
54	GENETEST REVIEW Genetics in Medicine Clinical and genetic aspects of Ehlers-Danlos syndrome, classic type Add to Reading List Source URL: www.ehlersdanlosnetwork.org Language: English - Date: 2011-01-23 08:57:17 Syndromes Contortion Collagen disease Collagens Ehlers–Danlos syndrome Type-V collagen Collagen Hypermobility COL5A2 Anatomy Health Biology
55	Microsoft Word - FF Herit Dis Connect Tiss NL 5-13 FINAL Add to Reading List Source URL: www.niams.nih.gov Language: English - Date: 2013-05-29 13:02:55 Syndromes Medical genetics Collagen disease Connective tissue Congenital disorders Marfan syndrome Ehlers–Danlos syndrome Genetic testing Tissue Anatomy Health Biology
56	Physical and Behavioral Indicators of Child Abuse and Neglect Add to Reading List Source URL: www.healthy.arkansas.gov Language: English - Date: 2014-05-28 20:40:53 Ethics Medicine Genodermatoses Violence Collagen disease Child abuse Epidermolysis bullosa Domestic violence Ehlers–Danlos syndrome Health Abuse Family therapy
57	The holiday season is usually one of the most joyful times of the year, but for families coping with the loss of someone they love it can be another painful reminder that things will never be the same Add to Reading List Source URL: www.ehlersdanlosnetwork.org Language: English - Date: 2012-04-05 20:00:23 Ehlers–Danlos syndrome Syndromes Ehlers Health Collagen disease Contortion
58	Local Fundraising Proposal Name of Contact Person/Organizer_______________________________________________________________ _____________________________________________________________________________ Address __________ Add to Reading List Source URL: www.ehlersdanlosnetwork.org Language: English - Date: 2011-06-09 21:33:40 Ehlers–Danlos syndrome Health Fundraising Philanthropy
59	Procedures for Official Fundraising Events An official fundraising event is one that has been approved and accepted by Ehlers-Danlos Syndrome Network C.A.R.E.S., inc. 1. Prior to planning any fundraising event, the event Add to Reading List Source URL: www.ehlersdanlosnetwork.org Language: English - Date: 2011-06-14 08:15:41 Institutional investors Contortion Ehlers–Danlos syndrome Ehlers Insurance Fundraising Budget Economics Health Collagen disease Financial institutions
60	Dear Family and Friends, I am excited to tell you that for the first time there is hope of a treatment for Ehlers-Danlos syndrome (EDS). It is with a humble heart that I ask for your generous donation to help fund the re Add to Reading List Source URL: www.ehlersdanlosnetwork.org Language: English - Date: 2010-10-09 11:51:30 Syndromes Contortion Ehlers–Danlos syndrome Connective tissue Anatomy Health Collagen disease